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Anyone had Metastatic Squamous Cell Carcinoma?

Head & Neck Cancer | Last Active: Nov 10, 2023 | Replies (53)
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@mmsigler

@jamirenee72 I started my cancer journey in April 2021. I had what I thought was a pimple for about a year. I went to my dermatologist several times for it and told her to do a biopsy the last time I went in. When I went in to get the stitches out she told me she had read the pathology report and it was nothing to worry about. On Tuesday of the following week the Nurse Practitioner called me to let me know she had read the wrong report and that I have Squamous Cell Carcinoma. I was referred to a plastic surgeon and had surgery a few weeks later. The cancer affected my smile and left a large indent on my chin till April 2022 when I had reconstructive surgery to repair the nerve and tissue was put in the indent to fill it in. I seen the dermatologist today and she found a large and deep lump in my throat. She told me to contact my primary care doctor ASAP. I would be lying if I said I’m not scared. I’ve read about this cancer and it terrifies me. I thought it would show up on the skin before attacking something inside.
Was there a certain test your doctor did on you when you were seen by your doctor?
Are you currently taking any herbs or vitamins to help you fight it?

Thank you.
Myrtle

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Replies to "@jamirenee72 I started my cancer journey in April 2021. I had what I thought was a..."
lynkidd | @lynkidd | Sep 7, 2022

You need to go see an ENT ASAP to find out what this doctor is talking about. They seem very irresponsible to me with giving you the wrong diagnosis. Do this immediately

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Colleen Young, Connect Director | @colleenyoung | Sep 8, 2022

Hi Myrtle, I can imagine that you’re scared. This is something you need to have investigated immediately and it sounds like your dermatologist is referring you back to your PCP for testing or further to make a referral to an oncologist. It is possible that the cancer has moved to the lymph nodes. To rule out or confirm this, the likely test will be a biopsy. You can read more here:
- Squamous Cell Skin Cancer of the Head and Neck https://www.hopkinsmedicine.org/health/conditions-and-diseases/squamous-cell-skin-cancer

Have you made an appointment with your doctor? We’re here for any questions you have along the way. You’re not alone.

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Sue, Volunteer Mentor | @sepdvm | Sep 12, 2022

I have metastatic SCC, initially diagnosed in 2012 but with lung metastasis twice, a small tumor on a muscle, and finally metastasis to a kidney and lymph nodes. It can show up anywhere. You need to see an oncologist as soon as possible. It is beyond the scope of a dermatologist or primary care doctor. There are new immunotherapies approved for use for this disease and better prognosis has resulted. I am on one called Libtayo through my oncologist at Mayo Clinic, Rochester MN. and my tumors are gone at this point. There they use whole body CT scans or PET scans to check for metastases regularly. I also take Vitamin D, Curcumin, Beta Glucan supplements and a daily probiotic for immune support. Do your research and good luck to you.

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