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Anyone taper off Primidone?

Epilepsy & Seizures | Last Active: Sep 23, 2022 | Replies (12)

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@kel1

Hi @santosha sorry it took so long to respond. I haven’t tried acupuncture. But I’m a fan of meditation and yoga and what not. That’s what the book I recommended suggests with a healthier diet and all. You’re right doctors only prescribe the drugs to stop the meds but they never truly and how we’re doing or how we’re feeling on the emotional side. It’s only how we’re doing/feeling too alter the drugs.
So I agree with you.
It’s ironic because i talk yo my primary doctor and he was able to talk about mt emotions see how I was doing and what not then he tappered me off keppra he cared differently than my neurologist so did my pharmacist. It’s weird.
I think they only care more about the drugs they prescribe so they don’t do anything wrong.
Hope your weeks going well.
Kelly

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Replies to "Hi @santosha sorry it took so long to respond. I haven’t tried acupuncture. But I’m a..."

No worries @kel1, it has been a busy week over here as well.

Allow me to share one extract of a poem called Herd Keeper from Alberto Caiero.

"I try to undress myself of what I learned
I try to forget the way of remembering that I was taught,
And scrape off the ink with which my senses have been painted,
Unbox my true emotions,
Unwrap myself and be me... not Alberto Caeiro,
But a human animal that Nature produced"

This poem extract was mentioned in one of my yoga lessons this week to define what is true yoga. For me, it goes beyond that. With my epilepsy experience, I have gone through such a process of undressing and unwrapping myself. I somehow got reborn. This extract of Alberto Caiero's poem has touched very deeply inside. Perhaps it also inspires you and others in this group?

Have a lovely day 🙂
Santosha