Hi! I’m glad to hear your daughter is still in the hospital getting care. That mucositis is awful and needs attention, as well as just the recovery from her transplant.

I’m expecting she’ll be in their care for several more weeks and then the followup will begin. It all depends on the clinic, of course. But from my experience I had to stay near the Mayo Clinic in Rochester for 100 days. There were daily blood checks while I was in the area. After that it went to every two weeks at Mayo and local blood work done every other week. So there was close monitoring to make sure there were no surprises.

My advice for you, is to make a list of questions you might have. I gave you the pretty compressive list of post allo transplant guidelines from Memorial Sloan Kettering. I had my transplant at Mayo and have a similar guideline but it wasn’t online. I have a booklet which explains the precautions to take to avoid infections and such.

As you can see, there are a number of us ready to jump in with encouragement and information. @alive, @edb1123 and I are several years post Allogenic transplant and will be happy to answer any questions you have. Is there anything in particular you would like to know?