Welcome, @wendles
I moved your message to this existing discussion that @delormv recently started so you can connect with other members with ALH experience. See
- Atypical lobular hyperplasia: Did you have surgery? https://connect.mayoclinic.org/discussion/atypical-lobular-hyperplasia/

Radiation isn't always offered as a follow-up treatment to surgery. Was radiation recommended for you Wendles?

hi @wendles. I was diagnosed with ALH last year, after I had a lumpectomy. originally my lump was biopsied and thought to be a phyllodes tumor but after lumpectomy, it was found to be a fibroadenoma. the ALH just happened to be in the border of tissue that they removed with the lump. I was offered tamoxifen but, and I kind of feel selfish about this, I was 37 at the time and didn't like the idea of going through menopause that early. So I asked about mastectomy, specifically a prophylactic mastectomy with reconstruction if possible. the oncologist and general surgeon told me that it was an option. 6 months after my lumpectomy I had a bilateral prophylactic mastectomy with reconstruction. I will be post op 1 year in November 2022.

I was not offered radiation therapy for the ALH. Not sure if that is something that is normally offered.

I am also new here and was just looking to view other experiences. I'm a mom of 3 and a family medicine doctor.