Connect
← Return to Do you have increased coughing at night?
Discussion
Do you have increased coughing at night?
MAC & Bronchiectasis | Last Active: Jul 4, 2023 | Replies (74)Comment receiving replies
Good morning Helen, I did a little research, and it appears that the Arikayce may be the culprit, as cough and bronchospasm are both listed as common side effects. That is what I suspected, because many of the people here asking about cough while on antibiotics were also taking it.
I wonder what your doc has to say? Arikayce used to be the "big gun" for treatment resistant NTM, now it seems more like part of the treatment standard. Maybe if you are now getting negative cultures, you could ask to discontinue it?
Or, for those of you who are on your first-ever round of treatment could ask if it could be suspended until you see if the Big 3 alone are sufficient? I totally understand docs wanting to give you the best possible chance of success against this nasty infection, but maybe the 3 antibiotics plus 7% saline and good airway clearance would be a less difficult first effort?
Just my observation as one who suffered through the Big 3, but is now doing OK.
Sue
Replies to "Good morning Helen, I did a little research, and it appears that the Arikayce may be..."
Connect
Hi Sue and thank you for replying. My apologies for my delayed response. I do believe your correct as the Ariykace may have reactivated my cough which seemed to be under control prior to starting this med. I was started on the Big 3 on 6/22/22 and they did not increase my cough. The Ariykace started on 7/1/22 and since have coughed and become worse. I am going to request a CT scan at next visit which I believe in October. I am not sure if I get off the Ariykace now or wait for the 2nd culture and results from the CT scan? I will continue the Big 3 along with the 7% saline, Albuterol & aerobika clearance. I am also taking 5mg of steroids I have slowly weaned from 60mg at my insistence which is another concern as this was the only med that somewhat had my cough under control. Thank you Sue and hope you know your response and understanding along with your expertise is very helpful and appreciated.
I found this site when I had no real idea of what I would be up against and prior to starting the meds. Due to reading the posts I no longer feel quite alone and feel more prepared to ask questions and not be so afraid. Wish me luck and God Bless each of us. Stay well.