With the number of similar questions regarding baseline estrogen levels before starting AIs, it is clear to me that doctors and practitioners are not knowing how the AIs are affecting our levels. Like my Ex Oncologist told me, when asked how they know it’s working when there’s no baseline, ‘We just take it for granted’ NOT the correct answer.
I stopped my Anastrozole April 15 of this year. Made me feel 90 yrs old. I couldn’t even get in or out of car w/o help. Hip pain was bad. Instead of blaming the meds, I bought orthotics, did PT & walked (the best I could) to rule out it was me. It almost 5 months and I’m back to normal, for me. I’m able to be active again. I think at the 6 month mark or 9 months I’ll have the same estrogen test I had that just stated <10. I don’t know what that means but my EX oncologist (who flippantly told me, that was good) It’s the only number I have. 🤷‍♀️ The decision to stop AI was not easy. My hubby and I discussed at length. My quality of life at 69 is important and I’m proactive w/ my health. The decision isn’t for everyone and every cancer situation is different. My oncologist appoint last month went well and she didn’t try snd talk me into continuing w/ med. 🙏🏼 It continues to go well.
Blessings to you all.