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Clear Cell Endometrial Carcinoma: Rare, aggressive, hard to treat

Gynecologic Cancers | Last Active: Nov 3, 2022 | Replies (52)
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@sm22

hello - I was diagnosed with Clear cell EC III in June of 2022. I've had the radical hysterectomy as well as lymphonodectomy because the lymph nodes were affected in both the pelvic and para aortic region. The doctors wanted me to have both chemo and radiation, but after an anaphylactic reaction to Taxol, I have decided to just do radiation. How did you respond to your treatments.
thank you -

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Replies to "hello - I was diagnosed with Clear cell EC III in June of 2022. I've had..."
carla702 | @carla702 | Sep 8, 2022

I was diagnosed with clear cell endometrial carcinoma in July. It was initially discovered after painful metastasis to hip and sternum, as well as other smaller bone lesions in pelvis and spine. I had radiation to those 2 most painful areas and am now undergoing chemo (carbo-taxol) which I’m tolerating ok. No hysterectomy as they wanted to expedite treatment. Maybe later depending response to chemo. I also need hip surgery due to pathological fracture and bone loss, so in a wheelchair until then.
There seems to be little solid research due to rarity, I’m considered stage IV due to Mets outside of pelvis but moving forward with hope.

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