This was a very interesting article and YouTube video. I found it several years ago in the first year of my son’s pain journey. His pain matches the doctors description in many ways. The location of the pain is on the opposite side of his abdomen and a touch lower but the local sensitivity of it as well as performing the Carnett test identifies it. He can point to it with 1 finger instantly!
He has lived with this for three years and has been to innumerable respected doctors in the Cincinnati Children’s Hospital group. He has had three rounds of trigger point injections that were unfortunately unsuccessful. He also had a nerve block under anesthesia without getting any relief.
Towards the second year of this chronic pain he was prescribed gabapentin which was the first time he noticed any change in this feeling. His best description would be it took the edge off and he was able to walk up and down steps without holding his abdomen with two fingers. After one year of increasing gabapentin dosages, he decided to wean off of it as the amount he was taking was not bringing a great deal of quality of life.
This post is getting pretty long but I wanted to share some key details on his journey.
He is scheduled to see the pain team in the Cleveland clinic this month for a second opinion and would gladly take any suggestions or even go to Minnesota to bring his quality of life back.