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Pineal Cyst: What symptoms led to your diagnosis?

Brain Tumor | Last Active: Sep 3, 2023 | Replies (40)

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@cmclafferty777

Please keep me posted @colleenyoung because we are presently at Mayo with my daughter Shannon who has an underlying paraneoplastic syndrome. Her recent symptoms since April 22 are not from underlying condition per her Boston specialist and Mayo docs. Symptoms, vomiting on/off for a few weeks, balance, gait, speech, movements that resemble parkinsons, tremors and myoclonus. Docs here are looking at functional neuro disorder. However, we just received MRI w contrast results and she has a small pineal cyst. I read this article and a lot of simalarities to my daughter's symptoms. The article calls out that neurologists are trained to dismiss these cysts so I don't know how my appt with neuro will go tomorrow. Here is the link to the article that was interesting by a doc in SC that began removing even small cysts. Since i'm new here i can't post any links ... google "pineal cysts worth a second look"
by medical university of south carolina Sunil J. Patel, M.D. this was from 2018,

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Replies to "Please keep me posted @colleenyoung because we are presently at Mayo with my daughter Shannon who..."

Welcome @cmclafferty777 and to your daughter. You are in good hands at Mayo Clinic. I hope you get answers at your upcoming appointment.

Hello @cmclafferty777, I would like to add my welcome along with @colleenyoung and others. I thought I would jump in for @colleenyoung and share a link to the article you mentioned.

-- Pineal Cysts: Worth a Second Look - Neurosurgeon identifies a novel constellation of symptoms that resolve upon excision of pineal cysts or cytomas:
https://muschealth.org/health-professionals/progressnotes/2018/yir/discovering/pineal-cysts

I know you are in great hands at Mayo but since you mentioned you aren't sure how your appointment with your daughter's neuro will go tomorrow, I'm wondering if you might find this site helpful to plan your conversation with the neuro -- https://patientrevolution.org/visit-tools.

Do you normally prepare questions ahead of time for appointments?