Your story sounds familiar to me. I have an autoimmune disease and my PCP wanted me to get the COVID vaccine but I was weary because I had read people getting Bells Palsy within 30 day after they had the vaccine and I already had BP and didn’t t want to be at risk again to get it. I listened to my PCP bc she was concerned that if if got COVID I would be a high risk bc of the autoimmune condition. I got the vaccine and within 30 days I got the Bells Palsy and it lasted quite a while. After that not sure how long after, I felt a tingling around my lips and thought I was getting a fever sore (Herpes Virus) it just spread to the whole side of my face and scalp, teeth and gums and I had the lightning bolts of pain intermittently, but mostly it was the numbness that bothered me the most, Trigeminal Neuralgia has been ruled out bc TN doesn’t usually cause numbness. I did 4 months of Prednisone, didn’t work, went on Gabapentin for about 4 months it helped with the pain but not the numbness. Had two MRIs and a Spinal Tap. The MRI showed no enhancement to the nerve, the ST was normal, no cancer or tumors. I was tested for Alzheimer’s & MS from the ST and thank God that was negative. The only thing they found was a protein called Tau Protein and they do not know what it means because it is usually a protein that is high when people have Alzheimer’s, and I tested negative to that. My Neuro/Rheum. Believe it is a complication of my autoimmune condition, causing inflammation or infection but I swear its from the COVID vaccine and like you I’m done with vaccines. In July 2025 it will two years and no answers. They call it a rare disease because they have never seen anything like it and basically don’t know how to treat it. It does involve the Trigeminal Nerve, so they are calling it Trigeminal Neuropathy. I tried Methatrexate, but it gave me too many side effects. They wanted to try IVIG infusions but I had some GI Issues and they didn’t want me to go through possibly having side effects and making GI issues worse. You know what, I’m glad they didn’t have me try it because I’m done, I feel good not having all these drugs in my body. I have accepted what is and am hopeful that things will eventually get better and burn out. I eat clean and healthy and I think that has a lot to do with inflammation so maybe in time I will wake up one morning and it will all be gone, not going to stress over it anymore because it has been controlling my life for two years and there’s too much in my life that makes me happy so thats my focus.