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Myasthenia Gravis: Share your treatment journey

Autoimmune Diseases | Last Active: Oct 21, 2022 | Replies (93)

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@lucylulu5280

Hi @pmci - I'd be interested in hearing what you and @ellen307 's think helped stop your symptoms. I was diagnosed in April 2022 with MUSK MG. At the time, my symptoms were only double vision and drooping eyelids. I thought I was having a stroke, so I went to the ER. During that visit on a Wednesday, I was also diagnosed hypertensive (for reference, I'm 54 and about 15 pounds over weight). On Friday, I started taking medication for my BP, eliminated all caffeine, gluten, animal products, and sugar from my diet. By Monday, my symptoms were gone and have not returned. I have never taken any medications for my MUSK MG. For now, my neurologist wants to see me every six months or if/when my symptoms return. I won't have antibody bloodwork again until Feb. 2023. While my diet may seem extreme (vegan/gluten free/sugar free/caffeine free), it's really not impossible - I can even eat in most restaurants! And worth the trade-off to not have MG symptoms. So just curious to know if you or anyone else here believes diet played a role in living symptom free.

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Replies to "Hi @pmci - I'd be interested in hearing what you and @ellen307 's think helped stop..."

Hello. When I was very sick with MG, decades ago, I recall that a heavy meal seemed to exacerbate my symptoms. However I’ve never noticed any other link between diet and MG, and have never heard anyone else make that link (but MG is such an under-researched condition that there could be an unknown link). The disappearance of my symptoms wasn’t a result of a change in my diet anyway. (No meat except in recent years chicken and fish, otherwise I eat anything). Good luck!