← Return to New to neuropathy, terrified and seeking advice from you guys

Discussion
Comment receiving replies
@rnlorena

@tijeras3 I am not quite sure what is the right action. I am guessing actually. That is why this group is here to help each other out. I am a retired nurse but no one knows everything thing not even me. I am frankly quite flabbergasted since all this started. I am dealing with it the best I can. I am glad there is a Mayo Clinic connect. I understand how frustrating it is for people to have issues and they don't have answers. Because I am experiencing that. But one thing I know for sure is no one can say, "I know how you feel." Because no one can or should say that.

Jump to this post


Replies to "@tijeras3 I am not quite sure what is the right action. I am guessing actually. That..."

Thanks for sharing your experiences through this complicated journey. I know none of us are identical, but every single one of us are trying to advocate the best we can in these unchartered waters we’re going through simultaneously with a lot of our doctors. I am trained in finance, not medicine, so learning from folks like you with an edge in medical knowledge is a big benefit here. Sharing your diagnostic trials and errors helps us consider possible paths to take or avoid and discuss with our doctors as we navigate through our journeys. And you’re right, this Mayo Connect forum is the best way to hear from peers with experience on ways to understand, cope with, and live most practically & comfortably with our neuropathies. Please let us know what you discover!