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← Return to Discontinuing MAC antibiotics
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MAC & Bronchiectasis | Last Active: Nov 27, 2023 | Replies (73)
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I agree. Right now I am on the Big 3 with Ariykace. I also take other meds and not once have my MDs expressed how I should take them. Does anyone have any suggestions as I am struggling with SOB, which has gotten worse, weight loss and extreme fatigue. Not sure how much longer I can continue the daily 3 as my body is showing the affects and my poor hubby is not sure if he agrees as I am seriously thinking of discontinuing my meds.. Please any advise on how I should takes the big 3 to make it easier.......
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Wow - Big guns! Helen, if I were in your place, I would really press the doctor to "back off" the 3 antibiotics to 3 times a week and see if you feel a little better. I think some of doctors really don't understand how awful the daily therapy is - for me it was FAR worse than every other day. Another option, which my ID doc let me do once, was a 2 week "antibiotic vacation" - it helped some as well.
Do you feel like your doc would be willing to do a CT to see if your lungs are improving, then consider adjustments? If you don't feel they listen to you, would you consider being seen at Mayo, NJH, or another lung specialty center?
Sue