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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 11 hours ago | Replies (7067)

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@rwinney

Hi @chelle2001, nice to meet you!
Your feedback is much appreciated, thank you for responding. Great news that you are in with Mayo for consultations with a team of specialists. You will be well cared for, and I can imagine no stone will be left unturned.

Mayo doctors/specialists and the PRC play for the same team at Mayo however, what I learned from Dr. Sletten during my time of rehab was that some Mayo doctors do end up referring patients to the PRC for rehabilitation when there are just no more medical interventions to help chronic pain sufferers and doctors have nothing left to give from their specialty lanes. Procedures and medications run the course and become less effective. If that is what you find after meeting with your Mayo team in MN, and they don't suggest the PRC then yes, absolutely you can request a referral to the Pain Rehab Center.

Either way I'm ecstatic for you and have hope that your Mayo visit will be a step in the right direction. I'm happy as heck that you now are armed with more knowledge about CSS and the chronic symptoms you experience. I am not a doctor, but in my opinion, you experience central and peripheral sensory nervous systems upregulation which is CSS. Now you have important information in your back pocket. Knowledge is power! When do you head to MN?

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Replies to "Hi @chelle2001, nice to meet you! Your feedback is much appreciated, thank you for responding. Great..."

I head to Mayo on October 3-5 to meet with a General Practitioner and Rheumatologist. Then I have another trip scheduled on December 2nd to have a consultation with the Fibromyalgia Clinic in the Integrative Medicine and Health Department. I'm hoping to get my visit with the Fibromyalgia Clinic moved up sooner (fingers crossed). Who diagnosed you with CSS? Was it a certain doctor/department at Mayo?