Hi! I was diagnosed with a borderline tumor in 2015. Mine tumor also 11cm! I named it Martin because I thought it might be a teratoma (these benign tumors can sometimes have teeth and hair in them, look it up it is really weird). The surgery involved removing both ovaries, fallopian tubes, uterus (including cervix), and omentum (had not heard of the omentum before). I also had borderline cells in my other ovary.

I wish you the best. My borderline tumor caused me excruciating pain because I had ovarian torsion (it was twisted around connective tissue) and also pushing against my other organs. Every time I had to go to the bathroom, I felt like my poop was jamming against the tumor. Once I had the surgery, I felt amazing. I have not had that much pain since.

My CA125 started creeping up in 2017 and I went in for a biopsy via laparoscopy. They found evidence of low grade serous ovarian carcinoma. This can arise from a borderline tumor, but rarely happens. I started taking an aromatase inhibitor and my scans stayed stable for a really long time. Each time my CA125 went up I had a scan and was moved to a different aromatase inhibitor. Things were scary but I continued to live and live so I stopped being as scared. It has been 5 years since that diagnosis (7 years total for both the borderline and carcinoma) and in spite of the recurrence, I'm still here! I start Trametinib this week.

After my borderline surgery, I went crazy doing bucket list type things. I had gastric sleeve surgery and lost 95 pounds (from 270 down to 175) because F being fat. I was suddenly brave enough to fight for a promotion which meant I could move to another state closer to a cancer center. Then I got an even better job, negotiated for more pay, and applied for a doctoral program, which I am in now. I got an annual pass to Disneyworld, married my partner of 12 years who has been there every step of this journey, went on my first cruise and was surprised by my then partner with a trip to Paris and visited Disney Paris. Phew!

Feel free to message me as I am happy to answer any questions.