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Breast Cancer and Neuropathy

Breast Cancer | Last Active: Aug 25 5:00pm | Replies (42)

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@picadilly

I have only been on Letrozole for 2 months and the neuropathy in my feet is so bad I have to stop taking it. So far I’ve tried Arimdex, same thing. I tried Exemestane and it crippled me 6 hrs after 1 dose. I get it to the point of not worth taking the drug!

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Replies to "I have only been on Letrozole for 2 months and the neuropathy in my feet is..."

I feel you. I had a double lumpectomy with radiation. I managed 6 months, off and on. That was 2 years ago. I gained weight and swelled terribly, couldnt walk, couldnt use my hands at all, depression, I had it all. I stopped, and went to diet. I am 69 now, 60 pounds lighter, and living my dream. The damage to my hands has not improved. I cant bend my fingers, but I manage. I walk 2 miles a day now, and am doing so so so much better. Are the side effects worth the small percentage of help? I dont believe so... My onco told me all I can do now is pray. So that is what I do, and live my life looking after my body thru clean eating and exercise... Best wishes to you on your journey.

I was on Letrozole for only 3 days and now have neuropathy of ears, pain around chin, eye ridge, mouth and numbness of the throat. I already had neuropathy of feet and was taking 120mg of Alpha Lipoic Acid (ALA) from Pure Encapsulations (brand makes big difference). I've increased it to 240 which is max and am getting relief but I think the damage is permanent. I will not try any other AI since they and Tamaxifin can cause neuropathy, especially if you're over 60.

I will not take any other cancer med and like others, walking, weights, etc. help but not completely. Good luck.