← Return to New to neuropathy, terrified and seeking advice from you guys

Discussion
Comment receiving replies
@rnlorena

I have some questions for anyone who has Paroxysmal Supra-ventricular Tachycardia. It has been awhile since I posted. I have SNF that is idiopathic and its non-length dependent. I have the pin pricks that are all over including the eyes. I was diagnosed last year with the SNF. I noticed a funny feeling in my chest last year and I thought it could be my palpitations acting up. I never felt that before. I had a holter monitor and it showed my heart rate was up at 183 so I was given Metoprolol. Well in June of this year I was sitting and watching TV and I noticed the funny feeling again and I checked my heart rate and it was only 97. So I went to another cardiology appt. and had a ZIO patch monitor. I really wasn't expecting anything, however, and I was shocked to hear I had the PSVT. I then went the next day to a Cardiologist who is an electrophysiologist and he looked at the ZIO results and told me that my PSVT was normal. I was not expecting that at all. I told him when my heart rate was up that they gave me Metoprolol and he told me that he doesn't like to give pills and if he had seen me originally he wouldn't have given the Metoprolol. As a health care professional I was too shocked to think about any other questions to ask. I went home and got on the computer and I actually read that it can be normal in some people. I know he is a very good Dr. but I wasn't expecting that at all. I told him I had SNF and he said he didn't know what that was. He said he would look it up and if he had another patient he would then be able to speak to it. I have weaned myself off of the Metoprolol because it is not helping me with that. I was also taking Magnesium for the palpitations but I took myself off of that because of other issues with taking it. I tried to get an appt at Mayo Jacksonville with cardiology but all of their cardiologists are full and are not taking anymore patients. I have been checking to see if there are any cardiologists that have treated and/or familiar with small nerve fiber. I know that SNF can affect the autonomic nervous system which includes the heart, your gut, your bladder etc. I have more questions regarding the PSVT. I also called Houston DeBakey Heart and Vascular and Birmingham and no luck. If I were to have sustained PSVT I go to the ER. Mine is short bursts of it. I appreciate any comments on this. I did read on Mayo about the autonomic neuropathy. First came the SNF then came the PSVT.

Jump to this post


Replies to "I have some questions for anyone who has Paroxysmal Supra-ventricular Tachycardia. It has been awhile since..."

Hi @rnlorena, I'm sorry you haven't been able to find any answers. I imagine you have done a lot of searching on PSVT but was wondering if you have seen this article:
-- Paroxysmal Supraventricular Tachycardia - Continuing Education Activity:
https://www.ncbi.nlm.nih.gov/books/NBK507699/

I'm not sure if you have heard about the Mayo Clinic Care Network which might be another resource to help get an appointment and hopefully some answers. Here's a list of members:
https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members

I don’t have an answer to your question, but two practitioners have directed me to read about Dysautonomia. You might want to read about that.