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Recently diagnosed with autoimmune disease - looking for support

Autoimmune Diseases | Last Active: Sep 10, 2022 | Replies (31)
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@mils

Thank you @SusanEllen66 for sharing your story, I hope you are doing well!
I understand when you say you that you look perfect on paper, I had tons of lab tests and diagnostic tests done and always got back with a "nothing's wrong with you" but I still couldn't get out of bed some days from the pain. Hopefully my next rheumatologist will take the time to dig a little deeper into this.

Thank you again for sharing!

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Replies to "Thank you @SusanEllen66 for sharing your story, I hope you are doing well! I understand when..."
SusanEllen66 | @SusanEllen66 | Sep 5, 2022

You’re welcome! Please hang in there. 🦥 I know it’s frustrating.

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msdoss | @msdoss | Sep 8, 2022

I had similar issues early in 2005. I was almost in a wheelchair with pain that came on within a six month period. I could hardly put one foot in front of another. All of my tests was normal. I was working as a Director of Medical Records, and I was sitting down with our Pathologist discussing my health. He reviewed all of my tests. He suggested that I might have Hypothyroidism. He said that lab values are usual values, but some people fall out of the lab norms. I was started on 25mcg of Synthroid, and within three months I was back to normal.
I was also told that I have an Auto-immune Thyroid condition. I had been off of Thyroid for 10 years, but had to go back on a low dose. My prescription is always changing. I presently take 12.5mcg 3 times a week. This is just my story as to what has happened to me in the past.
Good luck. I hope you can find out what is wrong with you, so you can get well.

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