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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 5 days ago | Replies (6907)Comment receiving replies
Hi Rachel,
Thank you for sharing this video! It was really interesting as it's a whole different approach to dealing with chronic pain. I am really intrigued. I just got accepted to Mayo through General Internal Medicine and will be visiting the Rochester location. I have lupus and fibromyalgia, so I will be meeting with a General Practitioner, Rheumatologist and have a Fibromyalgia consultation in the Integrative Medicine and Health department. If the PRC clinic is something I am interested in doing, would I just mention my interest to the doctors and see if they would be willing to refer me? I have not been diagnosed with CSS but it is spot on with what I am experiencing. I have pain signals going off all over my body day in and day out and my body is hypersensitive to many things - what I ingest, sound, smells, weather changes, heat, cold, etc. The pain is progressively getting worse and the pain meds don't nearly help enough. My doctors keep upping the dose or adding more, which I hate to do.
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Hi @chelle2001, nice to meet you!
Your feedback is much appreciated, thank you for responding. Great news that you are in with Mayo for consultations with a team of specialists. You will be well cared for, and I can imagine no stone will be left unturned.
Mayo doctors/specialists and the PRC play for the same team at Mayo however, what I learned from Dr. Sletten during my time of rehab was that some Mayo doctors do end up referring patients to the PRC for rehabilitation when there are just no more medical interventions to help chronic pain sufferers and doctors have nothing left to give from their specialty lanes. Procedures and medications run the course and become less effective. If that is what you find after meeting with your Mayo team in MN, and they don't suggest the PRC then yes, absolutely you can request a referral to the Pain Rehab Center.
Either way I'm ecstatic for you and have hope that your Mayo visit will be a step in the right direction. I'm happy as heck that you now are armed with more knowledge about CSS and the chronic symptoms you experience. I am not a doctor, but in my opinion, you experience central and peripheral sensory nervous systems upregulation which is CSS. Now you have important information in your back pocket. Knowledge is power! When do you head to MN?