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Anyone been diagnosed with CIDP? It's very rare

Autoimmune Diseases | Last Active: Oct 7 6:02pm | Replies (153)

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@casey1329

My husband had recently fallen a few times due to leg weakness, no other problems. Had several tests including EMG . The result, "Meets the criteria for a multifocal demyelinating neuropathy". However a blood test, Ganflioside IgG/Igm Ab Panel, result came back negative for multifocal motor neuropathy. I'm not so sure that he has CIDP. He has been a big drinker and I think that the alcohol acting as a toxin caused inflammation esp. in the gut. His white blood cell count was 27 , Sed rate 109 & C-reactive protein 450, all markers for inflammation. The inflammation was perhaps caused by "Leaky Gut". He has stopped drinking and just finished round two of intravenous immunoglobulin for the treatment of CIDP. He is feeling better, no more falls, but I tend to think that is because he stopped drinking. I hope to get an appointment with a neurologist that is an expert on CIDP. Any feedback would be appreciated. Thanks !

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Replies to "My husband had recently fallen a few times due to leg weakness, no other problems. Had..."

Chronic drinking of alcohol can cause peripheral neuropathy. That said, for members' reference, CIPD is not indicated as alcohol-related in this definition:

CIDP is caused by an abnormal immune response. CIDP occurs when the immune system attacks the myelin cover of the nerves. For this reason, CIDP is thought to be an autoimmune disease. Health care providers also consider CIDP as the chronic form of Guillain-Barré syndrome.