Connect
← Return to PMR: Pain moving around your body
Discussion
PMR: Pain moving around your body
Polymyalgia Rheumatica (PMR) | Last Active: Sep 24, 2022 | Replies (40)Comment receiving replies
Hi Therf. This certainly sounds familiar. I have only been diagnosed a couple of months and since then have had pain in my lags (both at the same time), groin areas, right knee and things, left bicep, right wrist (currently), shoulders…. When I wake at 4 am I move various body parts to see where it is today. Quite an experience…..almost like a game. I play French horn in an orchestra (this is played with the left hand) so I am so thankful that it is my right wrist that is affected and dreading that the pain with move to the left. I must say this is the weirdest disease I have ever known.
Replies to "Hi Therf. This certainly sounds familiar. I have only been diagnosed a couple of months and..."
Yes it is a weird disease. I've only been diagnosed recently and this is my 5th day on pred. I had to split my dose because nothing was working for the morning stiffness. I truly could not walk. Today I woke up at 5am and wiggled my legs and they worked! Hallelujah.
I do have severe shoulder pain but I think it was how I was sleeping. Need to work on that.
So glad this support group exists. No one understands this but us.
Connect
Hey there @elizabethjoan thanks for the reply. Yep your experience sounds so similar. Nothing in my wrists so far, so fingers crossed it stays that way. Wow, playing a French horn in an Orchestra is pretty impressive - hopefully PMR doesn't interfere with that. I referee rugby, so that's definitely not a happening thing right now!! It sure is a weird disease alright. Thanks so much for the reply and good luck!!