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What helped you make treatment decisions following DCIS lumpectomy?

Breast Cancer | Last Active: Mar 18 8:02am | Replies (119)
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@rene1636

Thank you for moving the message into a better discussion & providing links. I’m currently being treated locally in Missouri with a surgeon affiliated with a breast center at a local hospital. I’ve done a lot of research & my head is spinning. I’m trying to gather enough information to be able to make the best choices. It’s almost like the aftercare treatments of radiation & hormone meds are worse than the odds of the cancer returning. I realize both are “standards” of care but I’m also finding that they may not be exactly necessary for some DCIS cases using current clinical trail information. 97% of women are still alive 20 years after diagnosis. I’m starting to lean towards a watch, wait & see attitude unless my doctor can provide a compelling reason to do otherwise. I’m wondering if anyone else has done the same & what were their long term results, realizing that everyone’s case is different with all of the variables involved in DCIS.

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sakina | @sakina | Sep 6, 2022

Hi Rene,
I was diagnosed with DCIS last month and will be having a lumpectomy on the 15th. This is what my doctor (oncology surgeon) said:

OK, the decision RT results were reported August 22, from the right breast corneal biopsy material. This is excellent news. Your decision RT score results show a low risk profile, and I mean very low risk, at 0.8 where less than three is considered low risk. The decision RT score is on a range of 0 to 10 and corresponds to 10 year prognosis for ipsilateral invasive breast cancer and any ipsilateral breast event, that is, the total risk, of having either DCIS RT invasive cancer recurrence. Your score is 0.8, which, as I said, it’s very low risk. According to this assessment, your 10 year total risk of developing DCIS RT invasive cancer recurrent, is 7% with surgery alone or 7% with breast conserving surgery and radiation. The only thing that would render a lower risk would be if you chose mastectomy. It would be my best recommendation that you undergo lump ectomy and sentinel lymph node biopsy

So the best way to proceed would be to het that oncotype DCIS diagnostic test done which would show the likelihood of your recurrence after lumpectomy ( I assume)
Hope this helps.

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