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Myasthenia Gravis: Share your treatment journey

Autoimmune Diseases | Last Active: Oct 21, 2022 | Replies (93)

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@pmci

It’s great that you no longer need drugs for the MG. Could I ask how and why you stopped? My symptoms have also completely disappeared and I’m really curious as to why, especially as my blood tests show that I still have MG.

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Replies to "It’s great that you no longer need drugs for the MG. Could I ask how and..."

Hi @pmci - I'd be interested in hearing what you and @ellen307 's think helped stop your symptoms. I was diagnosed in April 2022 with MUSK MG. At the time, my symptoms were only double vision and drooping eyelids. I thought I was having a stroke, so I went to the ER. During that visit on a Wednesday, I was also diagnosed hypertensive (for reference, I'm 54 and about 15 pounds over weight). On Friday, I started taking medication for my BP, eliminated all caffeine, gluten, animal products, and sugar from my diet. By Monday, my symptoms were gone and have not returned. I have never taken any medications for my MUSK MG. For now, my neurologist wants to see me every six months or if/when my symptoms return. I won't have antibody bloodwork again until Feb. 2023. While my diet may seem extreme (vegan/gluten free/sugar free/caffeine free), it's really not impossible - I can even eat in most restaurants! And worth the trade-off to not have MG symptoms. So just curious to know if you or anyone else here believes diet played a role in living symptom free.