Theref...hi. I have had a hard time underdstanding my pain and wondered if.it was PMR or one of my other autoimmune gigs. I kind of understand what you are saying that the pain might be moving around so to speak. I think it can feel like that and sometimes it's from what activities you have done and how your body moves when affected by pain. Once you compensate for pain sometimes pain pops up in different and new places from muscles etc being used differently. I have had pain every day but each day the degree is different or it presents differently. So my shoulder and upper arm have been painful then one day my elbow and lower arm....OY! Also each day the areas involved "play at different volumes" so my back pain can drown out my arm. Then....I hope that makes sense. I will say I have learned a lot here and had to see I have problems with the typical PMR plain targets....and PMR affects the muscles not joints. I also see that we might each have non traditional areas that hurt. At the beginning my hands did me in. So not sure any.of that sounds right but I wanted to respond. Good luck.
Be well. Mickie

I was diagnosed with PMR back in Jan. 2022 and put on 20mg Prednisone immediately and the pain also subsided immediately (like overnight). I had been completely debilitated for the previous 5 months. Basically could do nothing, even sit on toilet or reach around. Lost use of my right hand and had to where a splint, which effect my work. Couldn't dress very well. It took an extremely long time. Could not drive as my neck was not co-operating, or my arms and shoulders. It was a terrible time.
Pred was like the miracle cure, however, reducing the dosage is not easy. I'm down to 11.5 mg as of this week. Some pain, but mostly manageable. Not in a rush as small amounts at a time (like .5 mg) seem to work better than a huge drop. It's not a race to get off the Prednisone. It's about pain management and quality of life during this time. Don't get dragged into the "you must reduce quickly" thing that some doctors and rheumatologist tend to believe. My new GP says slowly and if the pain returns go up a bit and he says "at least you are trying". All the best!