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Trigeminal neuralgia: What helps stop the pain?

Brain & Nervous System | Last Active: Aug 21 7:08pm | Replies (127)

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@jfn

@johnbishop

I thought this would fit into the general TGN forum, for the TGN pain relief.

My Trigeminal Neuralgia started with a trip to the dentist and crown that was too big. It took several years and many organ killing medications to find a dentist willing to work with me. That helped, but not enough as the nerve was quite unhappy. I went to a cranial sacral therapist and the pain was gone! We worked for 6 months on making the nerves happy. It would be triggered by sound, smell and light; however it would relatively quickly calm down. I then went through more dental hell. And it was so much worse. Nothing helped, with the help of a fantastic neurologist and the cranial sacral therapist, I can exist using Baclofen. It is now triggered easily, like walking in a doctor's office, perfume, my cooking on occasion, and fluorescent lights. My new neurologist does not like the use of Zipsor or Fiorcet for the resulting migraines, so frustrating. Dealing with TGN is a work in progress. Just for giggles, I now have Lyme disease and both the TGN and neuropathy are having a field day!

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Replies to "@johnbishop I thought this would fit into the general TGN forum, for the TGN pain relief...."

Used Botox for post herpes neuralgia around and in eye. It helped. Hoping to get another injection next month.