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Undiagnosed Autoimmune Disease - No one will listen to me
Autoimmune Diseases | Last Active: Jan 24 3:56pm | Replies (173)Comment receiving replies
Your symptoms sound very similar to mine… You may want to look into Mast Cell Activation Syndrome. This link is to a guide for any doctor to begin the diagnostic process…it may also be good to have all your vitamin levels checked. It is also very common to have a gene mutation that impact absorption of vitamins…but easily treated…ask for a MTFHR gene test.
https://www.ehlers-danlos.com/wp-content/uploads/MCAS-Primer-for-the-Gastroenterologist.pdfAs for itch, which is a super common symptom of so many medical problems…I take an otc supplement, Beta Alanine, 750 mg kills the itch for me…someone on a Facebook group for itch related issues discovered it…it is typically a preworkout supplement but at a higher dose…I buy the NOW brand on Amazon.
Replies to "Your symptoms sound very similar to mine… You may want to look into Mast Cell Activation..."
Is the Beta Alinine a powder? If so how do you measure 750 mg? Thanks for your suggestion. I'll try anything for my eczema at this point.
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Keep in mind that true MCAS is similar but different than what we as Long Haulers experience. It basically takes a bone marrow test to diagnose true MCAS. My labs were all normal but my allergist pegged it for me. Histamine Intolerance with Mast Cell involvement. Walking into a doctors office with an internet diagnosis in hand can backfire the Physician Ego. My Allergist is an exception to that rule thank goodness.