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@njtodctode

I would if I didn't feel so sick all the time. I am a mess and wondering what is going on....too much pred?...not enough?..do I have PMR....my back spasms are so bad I have to sit after about 10 mins of standing. What?????????That's why I am trying to find out what kind of back pain you all have. I am so upset because as you see I have lived with.pain and with all of those conditions since early 90's... worked in an insane fundraising jobs for non-profitd with crazy.hours including directing 2 - 3 day breast cancer walks.....but because my doc and I figured out meds I was able to work. Years later I hit a wall and had to stop. While I am afraid of going places filled with lots of people because of covid (I still need to get the 4th booster but can't cuz of the pred) I appreciate your advice 100%. I feel a bit list. I also just moved to Delaware in the past year and still have stuff to do around here. I live my house so much.which is good...I downsized from a bungalow....this is one level, small and new. I have to be honest....I am not sure I do have PMR....But I think I am just overwhelmed and tired of asking the same questions. I don't 't know how to evaluate these symptoms. My foc is not available to see me until end of Sept. She was of the mind of hurry up and get off the pred. So I am kind of doing my.own thing. Do I wait until my back and hips are better? Should I reduce and see if I feel less sick? Blah blah blah. SORRY.....I am not having a good day. I feel like the pred is not right....that's a gut feeling. But I know I have to be super careful
Anyway.thanks for your help and support.

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Replies to "I would if I didn't feel so sick all the time. I am a mess and..."

@njtodctode, PMR can be difficult to diagnose and prednisone normally takes away the pain when you start taking it. I know we like to get off as soon as we possibly can but if it were me and I wasn't sure if it was PMR or something else like fibromyalgia, I might just bump up my dose for a few days to seek if it makes a difference. If not, switch back to what I was taking before. You mentioned in a previous post about having fibromyalgia and a few other conditions. Not sure if this is helpful, but it might provide some symptom information.

"Similarities and differences in symptoms of polymyalgia and fibromyalgia include: The location of the pain. People with fibromyalgia often experience pain on both sides of the body, usually in 18 key places. People with polymyalgia typically feel stiffness and pain in their shoulders, back, and hip girdles."
-- Polymyalgia vs. fibromyalgia: Similarities and differences:
https://www.medicalnewstoday.com/articles/321532

Hoping you find some answers soon...