← Return to Lewy Body Dementia at age 51: Anyone else with early onset LBD?

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@dadbrother2022

Hi there. I’m sad to hear about your husband and also for sure how young he is. My brother has recently been diagnosed at 47 with dementia which they feel is Alzheimer’s. I do believe though that he has probably had it for three years. So very young. My dad had Young onset dementia at probably the age of 59. It is hereditary and it is supposed to be faster. But my dad live for nine years and he actually did quite well with it believe it or not. I know that that’s not the norm though but I was blessed to be able to take care of them the last two years and it was and it was good but that saying I do know that it is rough and difficult I know my brother is struggling with his symptoms. I do believe that there is not enough help or understanding for early onset dementia’s.
Being diagnosed with a onset of dementia under the age of 65 is a pretty big deal and it is usually hereditary and genetics play a factor in it. And it sucks because me and my sister could possibly get genetic testing done to see if we have the gene as well. I probably will but I don’t think she will. Anyways I hope things go good for you and that you can find some support on this website. Also is there anybody else in your husband’s family that has suffered from this?

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Replies to "Hi there. I’m sad to hear about your husband and also for sure how young he..."

What a kind and helpful post, @dadbrother2022. I think you may have been directing your comment to everyone, but specifically to @jen26. I've tagged her to make sure she sees it.

@dadbrother2022, getting genetic testing is a tough and personal decision. I can understand both your sister not wanting to get tested and your wanting to get tested. Have you decided to do it?