Connect
← Return to Prednisone tapering is challenging. What does remission feel like?
Discussion
Prednisone tapering is challenging. What does remission feel like?
Polymyalgia Rheumatica (PMR) | Last Active: Sep 3, 2023 | Replies (209)Comment receiving replies
Dear Njtodctode, I don't know if that question is rhetorical or not, but here is a suggestion: Get moving. If you can find a PT place that is quiet (not the noisy gym type) where they deal with all levels of mobility. Surely, your rheumy will give you a referral. Be vocal about your needs and start low and slow. Or failing that, find a pool where you can go and just move around in the water. This is good because it supports joints. Anything you can do will help. If you are already doing all this, then that's great. What I heard a doctor say once comes to mind: "Life is hard by the yard, but a cinch by the inch." We're living proof or that. (I think you have even more auto-immune diseases than I do! We're tough or we wouldn't be here.)
Replies to "Dear Njtodctode, I don't know if that question is rhetorical or not, but here is a..."
Connect
I would if I didn't feel so sick all the time. I am a mess and wondering what is going on....too much pred?...not enough?..do I have PMR....my back spasms are so bad I have to sit after about 10 mins of standing. What?????????That's why I am trying to find out what kind of back pain you all have. I am so upset because as you see I have lived with.pain and with all of those conditions since early 90's... worked in an insane fundraising jobs for non-profitd with crazy.hours including directing 2 - 3 day breast cancer walks.....but because my doc and I figured out meds I was able to work. Years later I hit a wall and had to stop. While I am afraid of going places filled with lots of people because of covid (I still need to get the 4th booster but can't cuz of the pred) I appreciate your advice 100%. I feel a bit list. I also just moved to Delaware in the past year and still have stuff to do around here. I live my house so much.which is good...I downsized from a bungalow....this is one level, small and new. I have to be honest....I am not sure I do have PMR....But I think I am just overwhelmed and tired of asking the same questions. I don't 't know how to evaluate these symptoms. My foc is not available to see me until end of Sept. She was of the mind of hurry up and get off the pred. So I am kind of doing my.own thing. Do I wait until my back and hips are better? Should I reduce and see if I feel less sick? Blah blah blah. SORRY.....I am not having a good day. I feel like the pred is not right....that's a gut feeling. But I know I have to be super careful
Anyway.thanks for your help and support.
.