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← Return to Gardening with Bronch and MAC
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Thanks for your response Sue. Now I won’t start feeling paranoid staying with our friends. Yes, I have bronchiectasis and MAC, specifically MAI diagnosed after a CT and bronchoscopy last Oct. The CT was for something else but ended up showing the bronchiectasis. Of course I wonder if I may have other MAC bacteria because I was unaware of the precautions needed to take to prevent further infection other than told to change my shower head by my pulmonologist. However, she did start me on airway clearance (albuterol & 7% saline) but didn’t explain the importance of it other than to get the mucus out which is a difficult concept when you don’t feel like you have any. I have learned many of the things to do or don’t do (and how important airway clearance is now) through support forums and watching webinars. I didn’t cough up sputum until a month ago and then it’s not every time. Otherwise I have no symptoms other than just feeling low energy but not fatigued. I have not agreed to go on the antibiotics yet even though the pulmonologist and ID doctors want me to do so.
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I just found this thread and read your post.
As of Sept 3. 2022 you did not start the antibiotics.
I am preparing to start Azithromycin and Ethambutol by getting my 'gut" ready vis probiotics a couple of times a day and will also take the probiotics once I start in a week or so.
My question: My concern is if one does not take the antibiotics do we allow ourselves to develop more serious lung problems?
My sputum to date from 10/23 on has continually shown MAI per the readings of the test results. I am fortunate, or unfortunate. I have to clear my throat of mucus almost all day long and a great many times I am able to clear out the mucus plugs with seeing the plugs in the clear cup I remove it to as I bring it up and out. Per the Oct. CScan I have less inflammation and plugging in two areas and a new area of plugging in my lower left lobe of which I hope to clear up in the next month or so due to my learnings this month. I feel well overall and am sleeping better than I was before having started the airway clearance methods.
How did you do with not starting the antibiotics when told you had MAI?
Did you eventually go on the antibiotics?
Did your mucus plugging clear up and therefore not have to go on the antibiotics?
I am interested in knowing your journey these last two years with MAI etc. if you have time and comfortable sharing that info.
Thanks'
Barbara