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Myasthenia Gravis: Share your treatment journey

Autoimmune Diseases | Last Active: Oct 21, 2022 | Replies (93)

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@ellen307

Sorry to here of your long journey with Myasthenia Gravis. did your neurologist do tensilon test??

I had this when I first began with droppy eye lids, eye Dr discovered this during recent exam. Dr put me
in the hospital and did INJECTION of blind study to see if I began to perk up which I did so I was put on
Mestion, did well then kept coming doing with Bronchites by then My Neurologist put me back in the hospital
Did read about surgery in case I would have to have it done, needless to say in 1971.
It was my Birthday gift to have sur gery gee thanks Dr G.
Remove my thymus gland and put me in ICU did welllong last went home but had to return 2 weeks late.
Have ups n down for few years. Now 2022 doing well just getting older. No drugs for Myasthenia Thank you

Ellen307

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Replies to "Sorry to here of your long journey with Myasthenia Gravis. did your neurologist do tensilon test??..."

It’s great that you no longer need drugs for the MG. Could I ask how and why you stopped? My symptoms have also completely disappeared and I’m really curious as to why, especially as my blood tests show that I still have MG.