I have a story with many similarities from 2011. All forms of neurostimulation ended up aggravating my pain , like it does for you.
The main thing I can offer is commiseration. It sucks so much..I liken it to being trapped on one side of a river looking across at the other side where people are going about their normal lives oblivious to what a life with chronic pain is like ….it makes me bitter and angry .
I assume you’ve tried the various psychological pain approaches ..both the types that distract in the moment ( meditation , visualization etc) and the mind / body neuroplasticity stuff that changes the way your brain perceives the pain . There are a ton of these ..from books to courses, podcast , apps etc etc . They all have scientific success rates similar to any medical procedure or medicine , so it’s a combination of these that might be the thing . If you haven’t , that’s an important direction to go in .
Once you’ve gone down all those roads , like I have , you can try a “boot camp “ approach where you stop trying treatments , accept this pain demon and focus on living with it ..sounds horrible but it’s a way forward for many . I’m going to try it hopefully. I have applied to the Mayo Clinic's pain rehab program , which has this focus. Scary stuff , but at least I’ll meet people struggling like you and me . In the meantime , maybe a new treatment or surgery will be developed that will help you or me …they are getting better and better at turning nerves on ..they just need to get better at turning rogue ones off.
Feel free to commiserate , but if my “ Debbie downer” story is too triggering , I understand that completely .