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@johnbishop

Hello @lexaprobiotic, Welcome to Connect. Sorry to hear that you've seen so many doctors with no answers. Your symptoms sound like they could be a number of different conditions. My first thoughts were polymyalgia rheumatica (PMR) which I have had two occurrences and it is crippling when you first have it and don't know what's going on. Also, there are many other conditions that mimic PMR. Hoping other members can relate to your symptoms and share their thoughts or suggestions.

You mentioned that you've seen several specialists. Have you seen a rheumatologist? Are your symptoms constant or do they come and go during the day/night?

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Replies to "Hello @lexaprobiotic, Welcome to Connect. Sorry to hear that you've seen so many doctors with no..."

I saw an ENT when the lymph nodes behind my ears were swollen to the size of hazel nuts, however it was brushed off as a reaction to some type of infection and the resulting size was due to scarring. Due to your suggestion, I read up on PMR and found that hardly any of my symptoms match. I am under 25 so it would be an extremely rare experience, but I appreciate your ideas. My symptoms are completely random and never seem to be specific to a certain time. It could be three o'clock and my leg itches, or it could be ten thirty and the joints in my fingers feel like they've been smashed with a hammer. It doesn't surprise me that it's hard to diagnose, but it is disheartening.