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Pineal Cyst: What symptoms led to your diagnosis?

Brain Tumor | Last Active: Oct 30 3:42pm | Replies (45)

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@golfguy2282

@colleenyoung Thank you for the welcome.. Yes, I've been added to a cancelation list and I'm filling out an appointment request with Mayo. Hoping for the latter to work out, would very much appreciate being taken care of by Mayo doctors.

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Replies to "@colleenyoung Thank you for the welcome.. Yes, I've been added to a cancelation list and I'm..."

Please keep me posted @colleenyoung because we are presently at Mayo with my daughter Shannon who has an underlying paraneoplastic syndrome. Her recent symptoms since April 22 are not from underlying condition per her Boston specialist and Mayo docs. Symptoms, vomiting on/off for a few weeks, balance, gait, speech, movements that resemble parkinsons, tremors and myoclonus. Docs here are looking at functional neuro disorder. However, we just received MRI w contrast results and she has a small pineal cyst. I read this article and a lot of simalarities to my daughter's symptoms. The article calls out that neurologists are trained to dismiss these cysts so I don't know how my appt with neuro will go tomorrow. Here is the link to the article that was interesting by a doc in SC that began removing even small cysts. Since i'm new here i can't post any links ... google "pineal cysts worth a second look"
by medical university of south carolina Sunil J. Patel, M.D. this was from 2018,