This is 9/2/2022 I am dating this response because there are so many old responses. Two day ago I was told that I have NHP. I am terrified. They want me to have a spinal tap which also terrifies me because I have been told it is very unpleasant. I am in Indianapolis. I went to Goodman spine and bran. I was told after the MRI that I didn’t have it so I was shocked. I have been getting progressively more lightheaded for over 5 years. I have been to many neurologists, ENT, heart, gastroenterologist etc. I have been to Cornel whiel in NYC, Vanderbilt, etc. at no time have I been told anything except that I am fine. It has gotten so bad that my legs are numb toes to knees and progressing. I googled extreme pressure in my cranial cavity and that my head feels like it is going to explode from pressure. Up popped this. I called family doctor and said I wanted an MRI and appointment with Troy Payner a surgeon. All of the doctors before never heard on NHP.
I am on eliquis, because of DVT twice and strokes run in my family. I hav extreme scare tissue in my abdomen because of radiation for cancer. So I don’t know how all of that would effect this stunt process. They have all blamed extreme lightheadedness on the radiation. I didn’t give up and kept pursuing a prognosis.
Would someone tell me about the procedure and how painful it is and what they have gone thru. I am the worst patient and have no pain quotient at all. I think of not doing it. What would happen. Etc etc. if you had to do it again would you? Any information would be helpful from people who have gone thru this?!!!