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Pineal Cyst: What symptoms led to your diagnosis?

Brain Tumor | Last Active: Sep 3, 2023 | Replies (40)

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@golfguy2282

@jeep Thank you for the follow-up on your pineal cyst journey the last 10 years. I've suddenly been experiencing dull headache, dizziness, mild blurred vision and nausea over the last 2 weeks. No one has been able to explain the cause and it is severely impacting my daily life. I had a brain MRI yesterday in the ER and it revealed a 8mm benign pineal cyst. I have a follow-up with neurology and a neuro surgeon one month from now (soonest I could be seen). Waiting that long for any type of answer is agony.

@jeep @uldiver @aggiegal @elsk @blewicki How large were your pineal cysts? I was told 8mm is very small by the neuro-radiologist who reviewed my MRI. My guess is the follow-ups are to discuss if this could be causing the symptoms and schedule another brain MRI to see if it is growing. From this thread, it seems like the doctor community at large doesn't really believe cysts can cause the symptoms, especially ones that small. I'm just struggling with what could be going on. To put it bluntly, these symptoms suck. Thanks for your insight.

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Replies to "@jeep Thank you for the follow-up on your pineal cyst journey the last 10 years. I've..."

Welcome golfguy, I'd like to also tag @susanaz and @purpleturtle into to help with your questions about options with an 8 mm pineal cyst that is causing symptoms like you're having.

I'm glad your going for a follow up with neuro-surgery. Waiting for an appointment is really hard, especially when you're in pain. Did you ask if you can be added to a cancellation list?