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livetolearn (@livetolearn)

celiac disease: coping with change

Digestive Health | Last Active: Aug 10, 2012 | Replies (8)

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@roxie43

Hello,
Welcome to Mayo. Have you thought of consulting with a nutritionist? Supposedly, we are getting the proper nutrients in our diet but this is not always the case.
I take fish oil, vitamin B, Calcium chews, and three times per week a multivitamin.
Talk with your doctor to see if these things would help.
Take care and best of luck.
Rox

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Replies to "Hello, Welcome to Mayo. Have you thought of consulting with a nutritionist? Supposedly, we are getting..."

What are the symptoms of Celiac disease? I have upper right quadrant pain and also seems to radiate towards my right kidney and my right shoulder blade when it’s really bad. I’ve had ultrasound and blood work which shows nothing. I took myself to a Gastroenterologist who ordered more blood work for Celiac and IBS which hasn’t come back yet. Also scheduled for tow MRI’s. I’ve had this for two months now.

Any help would be appreciated.

Celiac disease has a lot of symptoms that vary from one person to another. My blood work came back negative which got me off track for a while. Years later I ended up seeing a Gastroenterologist who explained the only true test to know if you have it is the endoscopy. After the test results showed blunted villi and along with my symptoms it was most probable that I have it. For years I have been having stomach pain,fatigue, dizziness, unable to concentrate, sore muscles , shortness of breath and more.I always say it’s like living a half life or like a tv that needs the fine tuning adjusted.Some of the symptoms sounded like nutritional deficiencies,which ended up being true because I wasn’t absorbing the nutrients.Now I am still working on correcting my years of malabsorbtion and hoping for success. Some problems are not fixable,like the calcium loss in my bones.My iron is starting to go up though. Not sure if this is any help ,but good luck to you.

Thank you – I have a lot of those same symptoms.It certainly is a puzzle.

I have Celiac disease and have been in the hospital with what the Drs thought was IBS. It had been going on for almost 10 years. Now I am going on 17 years and was finally diagnosed 2 years ago with what it really was. The only problems that I have with it now is the diet. It is very hard to stay gluten free. There is gas and bloating and all kinds of different things that will go with this disease. TRYING to stay on the diet will help a lot if you can do it. You really have to just put your mind to it and hopefully you will feel a lot better.

Hi livetolearn,
My story is similar to yours. However, I disagree that the calcium loss is not fixable. I was diagnosed with severe osteoporosis, much to my surprise, before I was diagnosed with celiac disease. I went on HRT for a couple of years, and had gotten to a diagnosis of osteopenia. I then went on Fosamax for a couple more years, and my last bone scan, maybe five years ago, showed my bones to be normal for my age, according to my doctor. I had always taken a calcium supplement containing magnesium, vitamin C and vitamin D, and I think that helped in restoring my bone health. Once I gave up the gluten, I could absorb all the nutrients I was taking in. In fact, I gained 20 pounds within a few months after going gluten-free. And I’m still trying to get rid of them!

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