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Prostate Cancer- getting help-questions answered
Prostate Cancer | Last Active: Sep 21, 2023 | Replies (69)Comment receiving replies
I WENT TO CANCER SPECIALIST AND HE CRIED AFTER HEARING WHAT MY LARGE UNIVERSITY BASED DOCTORS HAD DONE/NOT DONE----MAY 12 FUSION BIOPSY ALL 9 GLEASON SCORES...ON LEFT SIDE NOW SEPTEMBER AND- STILL WAITING.....FOR SOMETHING TO HAPPEN....BULGE ON LEFT SIDE, TOO BIG FOR SURGERY "TOO LATE FOR SURGERY" "FOR YOU TOO MANY EXPECTED NEGATIVE SIDE EFFFECTS FROM BRACHYTHERAPY" SO ...WIDE BEAM ONLY EVEN THOUGH THEY NOW HAVE PROTON BEAM (NO PROTON BEAM FOR YOU HERE BECAUSE INS SAYS IT COSTS TOO MUCH AND THE LONG TERM DATA IS THE SAME FOR MEN WITH WIDE BEAM AND PRONTON" "NO MORE PSA TESTS FOR YOU" AND NO SPACE OAR GEL PAD....NOT FOR MEN ON BLOOD THINNERS" I AM ON CARVEDILOL -----I FEEL LIKE I AM GOING TO BE WIDE BEAM RADIATED AND MY COLON WILL GO CNCEROUS IN 5-7 YEARS OR MY BLADDER----THEY WILL DO 44 DAYS---IT IS A OLD VARIAN HALCYON MACHINE NOT LIKE NEW Varian TrueBeam Linear Accelerator, 67 MILES AWAY....AND I CAN WALK 3 MINUTES TO THE OLD ONE----I FEEL LIKE I AM BEING BLOCKED FROM NEW AND SAFER TECHNOLOGY AND JUST EING INSERTED INTO A LINE OF MEAT SAUSAGES FOR RADIATION AND THAT NO MEN EVER GET ALL THE CANCER KILLED OFF AND I WILL DIE SOONER BECAUSE OF IT....GOOD LUCK TO YOU
Replies to "I WENT TO CANCER SPECIALIST AND HE CRIED AFTER HEARING WHAT MY LARGE UNIVERSITY BASED DOCTORS..."
Hi @tnola123th, I'm really sorry to hear that options appear to be limited or limiting for you and that you have lost confidence in the care that you're getting. This is your life and understandably you're upset and shouting. Might it be possible for you to get a second opinion at a large cancer center of excellence?
It would help me, at least, to know how old you are. Also, are you on Medicaid or Medicare?
"Üniversity Based Doctors" - Here in Connecticut Yale/New Haven has been gobbling up independent doctors' offices like a kid binging on Halloween candy. A good thing or not? Very difficult to say, at least for a non-medical person like me.
My prostate cancer was seemingly entirely in my prostate. The urologist I was seeing was hell-bent on giving me robotic assisted surgery. I told him to slow down because I needed to satisfy myself that I understood the basic facts between surgery and radiation. After a week of trying to make sense of internet information I went with the surgery. (And, yes, the idea of getting a radioactive cancer in my a...hole was a large factor!)
I am just about 70 years old. I'm living with 4 cats and a crack-addicted girlfriend. We started living together in 2005, about 10 years before she began hitting the glass pipe. She is 15 years younger than me. She's also in and out of the local hospitals emergency room a couple times a year. (3 months ago she disappeared for a few days. Then I got a call from her ... she had left our condo when I fell asleep. She claims she was sober at the time and going to the liquor store. She blacked out and hit a telephone pole. Her car rolled over a few times, according to the firemen who had to cut her out of the car. She was in the Continuing Care Unit for a week. Physically she had detoxed while in the hospital, but she has given up on life and went right back to a local crack house.
Anyway, I believe that I will be dead before I'm 80. I am trying to live with that in mind. I need to find homes for my 4 rescue cats before I croak. (until then I will still be their "daddy".) I WAS going to leave my girlfriend the condo, and perhaps marry her so that she could get my meager social security monthly payments, but NOT if it will go down the tubes because of her addiction).
Well, as you can see, a large part of my post surgical problems stem from my age. Which is why I ask you what your age is.
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Get 40 days of radiation with last 5 being rapid arch for margins Then get on Zolodex No concerns It stops testosterones the fertilizer for prostate cancer forget sex