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← Return to Anyone taper off Primidone?
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Epilepsy & Seizures | Last Active: Sep 23, 2022 | Replies (12)
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Hi @rosa66
I’ve not heard of Primidone. But I’m tappering off of Keppra at a very slow process. I haven’t had a seizure, but the side effects we weren’t expecting. Depression/anxiety/my body being ice cold/ the smell of the drug leaving me/ you name it.
I wish my neurologist would have told me the bad side effects of it but I think she was more concerned about not having a seizure but the affects of it leaving me are harder if I’m being honest.
Just like Primidone. I’ve not heard of that but good luck I hope my post helped you because tappering off any epileptic drug and stressful.
Kelly
Replies to "Hi @rosa66 I’ve not heard of Primidone. But I’m tappering off of Keppra at a very..."
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@kel1 have you tried acupuncture to see if it helps you with the bad side-effects of getting off Keppra? Hatha yoga is something that helps me much in controlling my anxiety.
It seems that many doctors are more worried about our seizures than our general well-being. At least, this is the impression I got from some doctors while I was being treated with AED. With many doctors, it seemed that being seizure-free was more important than my overall well-being (sleeping well, in a good mood, active, etc.).
Stay strong Kelly!!!! Wishing you the best of luck in tappering off Keppra!
Have a nice weekend!
Santosha