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@sepdvm

I thought an update about my husband's neobladder with radical cystectomy is due. While he has remained free of bladder cancer, one ureter was completely blocked at the 6 month postop scan. Now he has a nephrostomy tube to drain urine from that kidney until they can repair the ureter. Unfortunately, because of the blockage, he has lost much kidney function on that side. We are waiting to hear when his surgery is scheduled at Mayo Rochester. He also has a large incisional hernia secondary to the initial abscess and drainage through the incision. That will also need surgical repair. The frequency of these complications is rather high with the neobladder surgery, and we were not prepared for this. My advice to @suzyq2009 is to ask lots of questions about the surgery, postop care, and potential complications, no matter which urine collection system you choose with the radical cystectomy. Even at Mayo Clinic, that information was not freely shared with us as we did not ask enough questions. Good luck to you and it is wonderful that you are feeling well and keeping busy.

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Replies to "I thought an update about my husband's neobladder with radical cystectomy is due. While he has..."

Thank you for your advice, Sue. I just told my Oncologist 3 days ago that I want to be referred to Mayo Rochester for a second opinion and to schedule surgery there. The surgeon who removed my left kidney and ureter last year only talked with me about removing my bladder. He did not mention neobladder. I learned about that on my own.

I had not begun to think of questions, but after reading your post, I read more about neobladder and several questions occurred to me. Being a primary colon cancer patient with mets through my ureter into my bladder, I now wonder if neobladder surgery would be safe for me since I've had 2 colon resections, the last being in 2006. Do you mind telling me the time lapse/frame of your husband's surgery, complications, subsequent surgery(ies)?

I will follow your advice, and I pray your husband's recovery from this point will go much better with few, if any, complications.