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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 17 hours ago | Replies (7067)Comment receiving replies
June 14, 2014 had motorcycle accident and broke pelvis in several places. While placing hardware my lateral femoral nerve was damaged. I believe my nerves are hypersensitive, cortisone injections caused more pain, nerve blocks have not worked. Tried DRG, could not used because any stimulation caused my pain to increase. I have a Stimwave PNS and the placement of the lead increased my pain. When using the Stimwave I could not use because any stimulus caused more pain. Having it removed today.
Because of my pain level I do not go out much and sit in the chair most of the time to keep my pain down. Take 50mg of hydrocodiene daily, lidocaine patches and Voltren gel daily. Lost of muscle mass and in a lot of pain. Need help.
Replies to "June 14, 2014 had motorcycle accident and broke pelvis in several places. While placing hardware my..."
I have a story with many similarities from 2011. All forms of neurostimulation ended up aggravating my pain , like it does for you.
The main thing I can offer is commiseration. It sucks so much..I liken it to being trapped on one side of a river looking across at the other side where people are going about their normal lives oblivious to what a life with chronic pain is like ….it makes me bitter and angry .
I assume you’ve tried the various psychological pain approaches ..both the types that distract in the moment ( meditation , visualization etc) and the mind / body neuroplasticity stuff that changes the way your brain perceives the pain . There are a ton of these ..from books to courses, podcast , apps etc etc . They all have scientific success rates similar to any medical procedure or medicine , so it’s a combination of these that might be the thing . If you haven’t , that’s an important direction to go in .
Once you’ve gone down all those roads , like I have , you can try a “boot camp “ approach where you stop trying treatments , accept this pain demon and focus on living with it ..sounds horrible but it’s a way forward for many . I’m going to try it hopefully. I have applied to the Mayo Clinic's pain rehab program , which has this focus. Scary stuff , but at least I’ll meet people struggling like you and me . In the meantime , maybe a new treatment or surgery will be developed that will help you or me …they are getting better and better at turning nerves on ..they just need to get better at turning rogue ones off.
Feel free to commiserate , but if my “ Debbie downer” story is too triggering , I understand that completely .
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Hello @sheld11004 and welcome to Mayo Clinic Connect. So sorry to hear about your accident and subsequent pain as well as the PNS complications.
You will notice that I have moved your post into another discussion on chronic pain to allow you to more easily connect with other members who understand what you are going through. You can find the discussion here: https://connect.mayoclinic.org/discussion/welcome-please-introduce-yourself-welcome-to-the-new-chronic-pain-group-im/
Here is an article that may be of interest. It talks about stretching and movement as two of the ways you can address and attempt to distract from pain.
- 8 tips for managing chronic pain: https://www.mayoclinichealthsystem.org/hometown-health/speaking-of-health/8-tips-for-managing-chronic-pain
Is there any type of exercise you can tolerate to continue physical movement to some degree, even if just 10-15 minutes a day?