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Lost my legs and now both arms to Neuropathy.

Neuropathy | Last Active: Sep 11, 2022 | Replies (13)

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@casey1329

My husband ( 71 yrs.) is no where near as ill as you poor souls are but for whatever it's worth here is his story. Around the end of March he got out of bed and fell. His legs couldn't support him. He went to the hospital but all they could find was DVT. He came home had a few falls but slowly started to get better until the end of May when he couldn't move his legs to get out of bed. Back to the hospital, a supposedly a better one, where he saw more specialists than before. After 6 days he was discharged with a diagnosis of Parkinson's and again DVT, which was treated and cleared up in April. Finally, we found a neurologist who said he didn't have Parkinson's but diagnosed him with with Chronic Inflamatory Demyelinating Polyneuropathy (CIDP). She did the needle & electric current muscle & nerve test, EMG. He is now getting monthly infusion of Gamubex-C, human antibodies, and he is improving. Perhaps his treatment might help you.

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Replies to "My husband ( 71 yrs.) is no where near as ill as you poor souls are..."

Sorry for taking so long to answer because for some reason, I wasn’t receiving any notifications. My body is so fragile since I have a number of rare health problems and birth defects. I have a blood condition called MGUS, it’s precancerous cells that are progressing to either Multiple Myeloma or a rare form of Non Hodgkin’s lymphoma. It was these bugs that ate the myelin coating off the entire pain nerves in my legs from mid thigh to the tip of my toes. So the nerves have been completely destroyed and are dead. It did that to both legs and feet and is destroying the pain nerves in both arms and hands now. I’ve done research and the scary part is once they’ve destroyed the pain nerves in both arms and legs, the bugs may do the same thing to my motor nerves. Those are the nerves that allows your arms and legs to move. If that happens, I’ll end up a quadriplegic, non functional human being. But hey, I’m still here when 78 years ago, doctors told my mother to take me home because I was dying and nothing could be done to save me. Thank you for your post and hope your husband gets completely cured.
@becky1024