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@milld835

Yes. Neck and shoulder pain started after my first Pfizer vax in May 2021. This pain continued throughout the summer and I was buying different pillows, because I thought this was the cause of the neck pain. August 4, 2021, second Pfizer vax. 10 days later tried to get up out of bed, could not move arms or neck. Got into the tub and my daughter had to help me out. It escalated down right arm to right hand, which eventually looked like a claw. Very stiff and numb. I could not dress myself, I could not do my job because I couldn't grip the mouse. Had to wear carpal tunnel braces. Then it started down the left arm and into the left hand (which was not quite as bad). Escalated to my upper thighs and hips by November, 2021. Had to get a riser seat because I could not sit on the toilet, nor could I reach around. Completely dibilitated and still not diagnosed. Finally, my CRP was at 42 and the family doc believed me. Got me an urgent referral to a Neurologist. This, in Halifax, is almost impossible. He diagnosed me with PMR and the rest, as they say, is history. I have not gotten any more vaccinations, nor will I. Currently reducing the Prednisone. I am 72 and certainly not as active as I was. Back to work part time. If I overdo it one day, then I pay for it the next. Don't be afraid to rest if your body is tired. Some afternoons I have slept for 2 hours, sometimes it's just a power nap. This is a chronic, autoimmune disease and until it goes into remission (which could take years), you will experience quite the roller coaster ride. Stay with this group, it is so informative and you'll probably get more info than from a doctor or rheumatologist. There is another support group and I will link you:
https://healthunlocked.com/pmrgcauk/posts/private/139984459/dl-information-for-new-and-maybe-not-so-new-patients-with-polymyalgia-rheumatica-pmr-and-giant-cell-arteritis-gca
Hang in there ~ Deb.

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Replies to "Yes. Neck and shoulder pain started after my first Pfizer vax in May 2021. This pain..."

Thx - I joined the group you suggested. Hang in there!