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Living with epilepsy - Introduce yourself & meet others
Epilepsy & Seizures | Last Active: Jun 29, 2023 | Replies (462)Comment receiving replies
Hi Santosha.
Well my previous neurologist diagnosed me with Generalized and partial but then wanted to say some more.
I however think that they’re just tonic conic because they last for 1-5 minutes. I’m out of it for half the day and then I’m okay. So we’ll see what my new neurologist says.
I’ve heard of temporal lobe epilepsy I hope it’s not too hard on you.
I have talked to my doc about CBD I might now that I’m tappering off my meds just to see if it works and I’m calmer as well.
Does it work for you?
Kelly
Replies to "Hi Santosha. Well my previous neurologist diagnosed me with Generalized and partial but then wanted to..."
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@kel1 , Hi
Thanks for sharing this information about you!
I am feeling much better with the CBD treatment compared to conventional treatment with AEDs (Lamictal, Tegretol, Trileptal, Vimpat and Gabapentin) that I have tried for 2 years. If the CBD has eliminated 100% my seizures? No, but my seizures have reduced and have become milder. I prefer to have my average of 2 seizures a month with CBD rather than no seizures at all with some AED I took and feel depressed, with bad sleep, and experience other terrible side-effects I had with AEDs. I was in bed most of the time during this treatment, living like a sick person. Now I am back to a "normal" life and smiling again. But again, as I have mentioned I am a very sensitive person to any traditional medication. The reactions to traditional medication are much harder on me and in some cases, I do reverse the effects of those medications. I am happy for those that can control their seizures with an AED.
CBD is known for its calming effects, but what I believe helps me the most with my anxiety is my yoga practice (hatha yoga),
Hope you stay well 🙂
Santosha