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@greenacres Your feedback is awesome, thank you! I must congratulate you on being your husband's supportive "coach" and advocate. That's an important role. My husband was mine and learned just how support me through the PRC Family Day education. Chronic pain is a life change and impacts families as well as those who suffer the pain. Everyone could use help along the way to accept, understand and support properly.
Earlier, you asked about hearing from others who went through the program. I'm attaching an enthusiastic post from @mbcarl who graduated PRC -
https://connect.mayoclinic.org/comment/720579/She has not posted since which tells me she may be out there doing her best to live her new C-life and enforce the PRC principles, one of which is to omit pain behaviors. As you're learning about pain behaviors from the videos, a pain behavior is "anything you do, say or think that reminds you or someone else you're in pain", and should be omitted.
I've been hard pressed to find many returning members post PRC for this reason. That is a good thing! Not that Connect doesn't want members to return and share their experience post-PRC, but if members are on a stable pain-management path forward and move on, then it was all worth Connects support in the process.
I'm curious how your husband feels about the PRC principles that Dr. Sletten teaches? Has he watched the videos with you?
Replies to "@greenacres Your feedback is awesome, thank you! I must congratulate you on being your husband's supportive..."
@rwinney He has not watched the videos nor is he on this site. Dr. Sletten talks a lot about the pain some people experience and how it can effect your nervous system. This would make him more uncomfortable and fearful as would hearing about people's symptoms progressing. He's gotten off all of the meds except for a minute dose of doxepin at night(so small that it has to be compounded) and working on self regulating.
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@greenacres, @dbeshears1
Correction to my comments in the attached post.... I meant to type "cheerleader", not coach. Ugh, I didn't catch myself on that misspoken comment. It's an important one, too.
I'm fired! 😜
Debbie, thanks for the follow up reiterating "cheerleader" and the importance of understanding each person's supporting role. I see it really impacted you. How do any of us really know unless we open our minds to learn and be better. I learned through the PRC that my parents were huge pain behaviors for me even though they thought they were helping by always having sympathy. It can go either way...
- the suck it up, what's wrong with you, non-understanding or believing way
- the do it this way, know it all coaching way
- the poor baby, why can't doctors help or fix you way
Greenacres, I'm thrilled you shared that piece from the Family Day videos as your takeaway. I hope more members watch the videos and give feedback on their take aways.
Thank you both!