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Colleen Young, Connect Director avatar

Living with epilepsy - Introduce yourself & meet others

Epilepsy & Seizures | Last Active: Jun 29, 2023 | Replies (462)
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Profile picture for Chris Gautier, Volunteer Mentor @santosha

Hi @kel1
I am so happy for you and to hear that you have had hardly any side-effects in this process of taking Keppra slowly off 🙂 🙂 🙂
I believe I did not have such a brain burst experience during my seizures. Curiosity, are your seizures partial or generalized? My seizures are mostly partial (simple and complex), having temporal lobe epilepsy.
CBD is a component of Medical Cannabis.
Have a nice evening!
Santosha

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kel1 | @kel1 | Aug 31, 2022

Hi Santosha.
Well my previous neurologist diagnosed me with Generalized and partial but then wanted to say some more.
I however think that they’re just tonic conic because they last for 1-5 minutes. I’m out of it for half the day and then I’m okay. So we’ll see what my new neurologist says.
I’ve heard of temporal lobe epilepsy I hope it’s not too hard on you.
I have talked to my doc about CBD I might now that I’m tappering off my meds just to see if it works and I’m calmer as well.
Does it work for you?
Kelly

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