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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 3 days ago | Replies (6026)
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@andyoman50

I was diagnosed with Neuropathy in 2008. Numbness creeping up my legs, but the pain in my left foot dictates how much I walk. In the last three years, I've gone from walking a mile every other day and freely walking our house to measuring my steps each day. I'm on medical cannabis - pills, salve, and vaporizer (inhaler / ecig) and Lyrica. I use three different massagers for my foot. I take a motorized cart whenever possible. I've tried Gabapentin, but the cannabis,
Lyrica, and leg/foot massages help me the most. My dad had this and my brother has a very mild case of neuropathy. I'd appreciate any tips, treatments, or exercises that have helped others. Thanks!
Andy

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Replies to "I was diagnosed with Neuropathy in 2008. Numbness creeping up my legs, but the pain in..."
John, Volunteer Mentor | @johnbishop | Aug 31, 2022

Hello @andyoman50, Welcome to Connect. Sorry to hear you haven't found much that helps with your neuropathy symptoms. There are a few other discussions you might find helpful.

-- Neuropathy & Exercise: https://connect.mayoclinic.org/discussion/neuropathy-exercise/
-- Small Fiber Neuropathy: What helps?: https://connect.mayoclinic.org/discussion/small-fiber-neuropathy/
-- Supplement recommendations: What can help neuropathy?: https://connect.mayoclinic.org/discussion/supplement-recommendations-can-help/

You might also want to look at the information provided by the Foundation for Peripheral Neuropathy -- https://www.foundationforpn.org/living-well/

Have you made any lifestyle changes to try and help your neuropathy symptoms?

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julbpat | @julbpat | Sep 1, 2022

I noticed that you said your brother and father have similar symptoms. That is true in my family also. My sister and I have many identical symptoms, but have gone different routes with treatment. My Dad, who is 90 and walks two miles every day, has a lot of the pain, and his father did too, but not as many symptoms as us women.
Because Hudson Alpha Institute is in my town, I went to their Institute for Genomic Medicine. It was nice to have someone help me tie together all the puzzling and overlapping symptoms I’ve had for the past seven years. Sadly, the testing did not show any known genetic markers for what my family has, but they assured me that research is always ongoing, and I could be contacted at a later time with more information. It doesn’t change anything, but it’s nice to know that someone is researching on our behalf.

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