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Living with epilepsy - Introduce yourself & meet others
Epilepsy & Seizures | Last Active: Jun 29, 2023 | Replies (462)Comment receiving replies
Hi @kel1
Can you give more details what you feel when you have experienced brain bursts?
I have heard that coming off medications has its challenges and needs to be done smoothly.
I have experienced it myself when coming off Vimpat and migrating to CBD. My doctor did this transition very smoothly, taking several months, so as to reduce the effects of this change of medication. I am happy I did it!!!
Santosha
Replies to "Hi @kel1 Can you give more details what you feel when you have experienced brain bursts?..."
Hi @santosha thank you for replying. The bursts don’t feel more like a pop, but like a firing and my neurologist before said that’s what it is an epileptic firing in my brain. She was always trying to diagnose me with something before I saw my doctor. Not sure if you’ve experienced a neurologist like that🙄
But I’m being careful I’ve been on this med for 9 years and going off of it over a nine or ten week course so very slowly and I have hardly any effects. I’m happy for you as well whats CBD?
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Santhosha,
Is CBD all you are taking? Do you go to a doctor who monitors it?
My doctor suggested Vimpat but that can cause eye problems. I have macular degeneration and glaucoma. I am surprised at the little amount of time doctors spend on looking for suitable alternatives.