Hello @baleyismine2, Welcome to Connect. There are many types of neuropathy that are not diabetes related. Do you mind sharing a little more about your symptoms, diagnosis and any treatments you have tried?
Hello, I see you have had this problem for a few years, I was just diagnosed a year ago. My symptoms are stinging in my feet and losing a little feeling. Have you had the same problems? Did you see any other doctors besides your neurologist?
New to this site. LOL
Jack Buchter
Hello @baleyismine2, Welcome to Connect. There are many types of neuropathy that are not diabetes related. Do you mind sharing a little more about your symptoms, diagnosis and any treatments you have tried?
have been diagnosed with peripheral neuropathy and given medication, after reading side effects decided not to go that route. I am currently getting therapy massages, just started using essential oils. checking out different exercises to do. feet always hurt, right arm and hand pain with numbness in hands. looking at diets, trying to decide which is better for me also al thyroid issues on meds for that issue.
have been diagnosed with peripheral neuropathy and given medication, after reading side effects decided not to go that route. I am currently getting therapy massages, just started using essential oils. checking out different exercises to do. feet always hurt, right arm and hand pain with numbness in hands. looking at diets, trying to decide which is better for me also al thyroid issues on meds for that issue.
Oh my goodness......how did I miss your response? So Sorry. Your best bet this morning is to hear from @rwinney. Rachel is not a pain management doctor. However, she has lots of pain management experience as a patient and as a mentor.
@martyk Hello there. It's nice to meet you. I'm sorry you've been told you have chronic symptoms, and your podiatrist tells you they can't do anything else other than pain management. Thats tough to hear. The hardest part in learning that is acceptance, then coming up with a plan.
I was resistant to accepting my chronic symptoms and it took me quite a while to come to terms with the fact that there was nothing more to do, fix, or cure other than self-management of symptoms.
How do you feel about what your doctor told you? Do you feel you need another opinion, or are you ready to come up with a pain management plan?
Hello, I see you have had this problem for a few years, I was just diagnosed a year ago. My symptoms are stinging in my feet and losing a little feeling. Have you had the same problems? Did you see any other doctors besides your neurologist?
New to this site. LOL
Jack Buchter
Hi Jack @medman18, I wasn't sure who you were replying to in your post. You will notice we removed your personal email address from your message above. We recommend not posting personal contact information in the public forum. You can use the secure private message function to exchange contact information with another member.
To send a private message to another member, click on their @membername which takes you to their profile. Then click on the Send a private message link at the bottom of the members description.
I’m asking for information on the highly recommended R-alpha lipoic acid. My primary said YES immediately about my taking it. My question is what is the difference between R-alph and just alpha lipoic acid. I can Google it, but I thought someone might have knowledge and experience.
I’m aware Vitamin E with a dl is synthetic and I wouldn’t take it. Is this similar? Thanks!
I’m asking for information on the highly recommended R-alpha lipoic acid. My primary said YES immediately about my taking it. My question is what is the difference between R-alph and just alpha lipoic acid. I can Google it, but I thought someone might have knowledge and experience.
I’m aware Vitamin E with a dl is synthetic and I wouldn’t take it. Is this similar? Thanks!
I've been taking ALA for about 5 years. This was a suggestion by several neuro docs. About 6 days ago, I switched over to the R-ALA. I have no pain, only numbness and poor balance. I am taking 1200 mg. daily. I understand it can take about 3 weeks for any possible improvement. Fingers crossed. Ed
@martyk Hello there. It's nice to meet you. I'm sorry you've been told you have chronic symptoms, and your podiatrist tells you they can't do anything else other than pain management. Thats tough to hear. The hardest part in learning that is acceptance, then coming up with a plan.
I was resistant to accepting my chronic symptoms and it took me quite a while to come to terms with the fact that there was nothing more to do, fix, or cure other than self-management of symptoms.
How do you feel about what your doctor told you? Do you feel you need another opinion, or are you ready to come up with a pain management plan?
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Hello @baleyismine2, Welcome to Connect. There are many types of neuropathy that are not diabetes related. Do you mind sharing a little more about your symptoms, diagnosis and any treatments you have tried?
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3 ReactionsHello, I see you have had this problem for a few years, I was just diagnosed a year ago. My symptoms are stinging in my feet and losing a little feeling. Have you had the same problems? Did you see any other doctors besides your neurologist?
New to this site. LOL
Jack Buchter
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1 Reactionhave been diagnosed with peripheral neuropathy and given medication, after reading side effects decided not to go that route. I am currently getting therapy massages, just started using essential oils. checking out different exercises to do. feet always hurt, right arm and hand pain with numbness in hands. looking at diets, trying to decide which is better for me also al thyroid issues on meds for that issue.
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3 Reactions@nanoc, You might find the following discussions helpful:
-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
-- Small Fiber Neuropathy: Is there a special diet I should be on?: https://connect.mayoclinic.org/discussion/small-fiber-neuropathy-10/
-- Small Fiber Neuropathy: What helps?:
https://connect.mayoclinic.org/discussion/small-fiber-neuropathy/
Also, the Foundation for Peripheral Neuropathy has a list of treatments others have found helpful here - https://www.foundationforpn.org/treatments/
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1 Reaction@martyk Hello there. It's nice to meet you. I'm sorry you've been told you have chronic symptoms, and your podiatrist tells you they can't do anything else other than pain management. Thats tough to hear. The hardest part in learning that is acceptance, then coming up with a plan.
I was resistant to accepting my chronic symptoms and it took me quite a while to come to terms with the fact that there was nothing more to do, fix, or cure other than self-management of symptoms.
How do you feel about what your doctor told you? Do you feel you need another opinion, or are you ready to come up with a pain management plan?
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Like -
Helpful -
Hug
3 ReactionsHi Jack @medman18, I wasn't sure who you were replying to in your post. You will notice we removed your personal email address from your message above. We recommend not posting personal contact information in the public forum. You can use the secure private message function to exchange contact information with another member.
To send a private message to another member, click on their @membername which takes you to their profile. Then click on the Send a private message link at the bottom of the members description.
I’m asking for information on the highly recommended R-alpha lipoic acid. My primary said YES immediately about my taking it. My question is what is the difference between R-alph and just alpha lipoic acid. I can Google it, but I thought someone might have knowledge and experience.
I’m aware Vitamin E with a dl is synthetic and I wouldn’t take it. Is this similar? Thanks!
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Like -
Helpful -
Hug
2 ReactionsI didn't have increasing neuropathy til after 2006, last scoliosis surgery at Duke. Never had a mylogram. I'm not seeing anyone now who is helping!
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1 ReactionI've been taking ALA for about 5 years. This was a suggestion by several neuro docs. About 6 days ago, I switched over to the R-ALA. I have no pain, only numbness and poor balance. I am taking 1200 mg. daily. I understand it can take about 3 weeks for any possible improvement. Fingers crossed. Ed
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Like -
Helpful -
Hug
3 ReactionsI think I need another opinion.