@jenniferhunter, sure I will share my list when it's compiled. Yes, I had encouragement from one person in the group. Thank you for your time in writing all these things!
I have a great PT who has helped me a lot over the years including by directing me to the best shoulder surgeon around for a problem which PT could not solve. I probably trust him more than any of my other medical people.
I have another electrophysiologist picked out to whom I might go. A woman! In general, I think they listen better than the often-dismissive men. Checking my appointments I see that my next appointment with the electrophysiology department is actually with the APRN, not with the MD who hasn't returned one email from me in 2 years. It seems like a really strange culture!
I get really confused about him. I don't know what to make of him except he doesn't seem very helpful.
Maybe he is a good mechanic and that got him where he is. That is important, too, I know.
My mom had a pacemaker at age 85 after a big open surgery on her heart. That was almost an After thought. She was in the cardiac ICU for 3 weeks which was unheard of. That's too long of a story. This is long, too, because I've been telling them for at least 2 years that my heart rate was in the '40s while they said "Oh no it is always in the seventies" even though they had no way of knowing.
There are so many contradictions in this whole saga that I just don't know what to think sometimes. That's the real problem. I can't even begin to relate all that stuff.
Swimming and walking make me happy so I just keep at it.
My friend broke her ankle in Italy years ago and it took a very long time to heal. She was working there and flew back with a cast on her foot concerned all the while about getting a blood clot. The treatment for it in Italy cost her nothing. Quite a difference from here!
Thank you again for your help!